Join my on my quest to keep smiling through the day to day pains of living with severe eczema… <3

LIFE'S AN ITCH
ABOUT
The facts…

Twenty something years old. A lover of all things made out of cheese. Currently going through topical steroid withdrawal and shall be sharing my journey with laughter and tears along the way. ❤

I want this to be a place where we can learn, gain tips, share experiences and support each other. Friends and family will always be there but sometimes it takes a fellow eczema sufferer to truly understand. So, that’s what I’m here for, I’m here for those 2am scratching fests and those tears before having to venture out in public or go to work, and just simply for those quiet moments when you just need a little support to put a smile on your face. You can’t tell how much suffering is on a face that is always smiling. 😀

Well, I suppose I should explain who I am and why I feel the need to do this.

My name is Amy-Louise but I like to go by the name of Amy-Lou as it’s far more cool and hip! 😉 I need a name to match my reputation and as I’m known for being the coolest kat (spelt with a ‘K’ for added coolness) around I thought Amy-Lou was rather fitting.

Ok, ok, I’m completely lying! I am far from cool and definitely not hip. Unless having flaky, patchy, bleeding skin and having to constantly apply cream to stop itching and creating what can only be described as a snow storm when anyone walks past, is classed as ‘cool’ then I’d say I’m very much the opposite!

I pride myself on being a geek, being cool is so over-rated these days! 🙂

Why am blogging about my eczema you may be thinking, well, it’s most certainly not to parade my flaws all over the internet for the world to see, it is simply for you guys! For all of you suffering with this agonising disorder, for all of you that have lost your confidence because of the way it’s made you look and feel, for all of you who are at the end of your tether and feel you have no escape from this itchy shadow that controls your life and for those of you who are having to support someone going through this terrible, life changing, mental and physical problem.

I’m hoping to help all you unfortunate people out there by documenting my life experiences and in the process of doing so I am also kind of hoping to help myself get through one of the hardest times of my life. I will be discussing everything from products, clothing, techniques, tips and sharing information that could, in some cases, be life changing.

I’d love to hear all about your experiences and any of those awkwardly humorous moments you may have encountered due to your eczema nightmare. 😀

So, you want to know about my atopic dermatitis right…

I have suffered with eczema for 20 years, technically I started out with just a mild itch in the creases of my arms and on the back of my legs and as I’ve gradually got older it’s got worse and worse and now I’m faced with severe full body eczema. It is literally from my scalp to my ankles with the only place I don’t have it being my tiny feet, I’d prefer not to speak too soon though. I have recently found out that the reason for this is something called ‘topical steroid addiction’, something the doctors like to leave out when providing you with the magical steroid cream. Please go and take a look at https://didsomeonesaycheese.wordpress.com/the-facts-what-is-topical-steroid-withdrawal/ to find out what a topical steroid addiction actually is and how to solve it.

I do like to refer to it as my ‘itchy nightmare’ but by suggesting it is a nightmare I would be suggesting I’ve had sleep which is something that seriously does not fit into my itchy schedule. I have averaged about 6 hours sleep in the last 3 days and I am seriously starting to feel like an exhausted first time mum having to deal with a screaming new born every time she tries to get her head down! Except there is no screaming baby to go and rock to sleep, there’s just my screaming body crying out for my nails to scratch it until it bleeds and burns. With eczema this severe, I’m sure you’d all agree, there is no such thing as ‘relief’. For all you people out there that have to live with us I really do feel for you! It must be such a strange site to see someone literally tearing off their skin in a state of what I can only imagine looks like we are being possessed! If we were born in the 16th Century they’d think we had the devil inside us and would no doubt burn us at the stake!! Am I getting too morbid here!? I apologise, I have a tendency to get carried away with historical facts.

I often find myself on the floor in an upright foetal position in a constant scratching frenzy and wondering, is this what it would feel like to have fleas!? :S I even sometimes find my Cat staring at me in a judgemental manner and you know you’ve always hit a low point in life when you get judged by any animal! It’s an awkward moment for both parties involved but I think you’ll find, whilst following my blog, that my life very much revolves around awkward moments! They do make great stories as you get older though and if there is one thing I have taken from living with eczema and having to deal with the dip in self-confidence, the not wanting to go out, the sleepless nights, the agonising pain and the continuous dry red skin, it would be to just not take life so seriously. 🙂 A sense of humour is imperative when coping with eczema and so for my first entry on this page I will leave you with this… It is a saying that my nan used to say to me when I’d embarrass myself one way or another, I feel it relates perfectly to this: “If we don’t laugh at ourselves we’d just cry, and where exactly is the fun in that” 😀

So if this sounds like your cup of yorkshire tea then click that subscribe button and join me on my journey through ‘Topical Steroid Withdrawal’. You can also catch me on Instagram @cheese_isakindofmeat

Together we can, and we will beat eczema. 🙂 Amy-Lou ❤

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3 thoughts on “Join my on my quest to keep smiling through the day to day pains of living with severe eczema… <3”

  1. Hi there,
    It’s so nice of u to be raising Awaremess of eczema. My daughter has eczema age 5 she has been on steroid cream for 2 years she has to be fully bandaged in the winter months. (Totally not her fawlt) the cruel looks she gets is horrendous like she got sumfink others can catch thankfully for her sake her mom (me) has a big mouth and I put all these horrible ppl back in there place. People should no it’s not catchable people with eczema are totally normal they just have a skin condition that effects there daily life….. It shouldn’t take people to go viral about eczema for people to accept it instead of staring at people go and ask the question because what’s under the dry flaky skin is sum1 totally normal probably a lot nicer than the person actually asking the question.

  2. Hi, my name is Alessandra and I am from Brazil. Well, I met your blog and I was very interested, I now how to live with a skin desease every day.
    I have seborrheic dermatitis that spreads throughout the body, tired to go on doctors and hearing that has no cure! Of course it’s not as bad eczema but also requires cares and medications that have to use for a lifetime.
    I thougth important you talk about it because we Allergy sufferes are no well understood in our needes, not to mention drugs almoust unalffordable prices. Then, continue the fight, we need to be hearing. Kiss. ❤

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